Hi pals,

I feel like I have to share the boundaries post again and specifically highlight a couple points as this was happening quite a lot again:

“I choose to share what I choose to share, I don’t mind questions but if I decide not to share anything, I have a reason for it and sometimes the reason is just ‘I’m not ready’ or ‘I’m not comfortable’ and that is enough.

similar to above, I do not HAVE to respond to comments but I like to do so as much as possible. however, there have been times where someone has continually pestered me, particularly if I have corrected someone or explained why what someone has said is problematic. I am sick. I don’t always have the energy to respond at all, but especially to some of the shittier commenters I have come across in my time. I like to reply and like to have discussions in my comments, but sometimes I am just not able to. Sometimes I will say so, sometimes I wont.”

I unfortunately get this a LOT when it comes to my Takayasu’s specifically. I understand there is not a lot of information out there or a lot of personal journeys being shared of Takayasu’s, there’s probably language barriers as Takayasu’s impacts people all over the world, BUT occasionally I get someone who continually asks about my Takayasu’s incessantly even on posts where I don’t even mention Takayasu’s.

This is also a reminder that whilst I have done a LOT of research into Takayasu’s and linked conditions, I am also not an expert nor am I a medical professional or scientist. I only know what I have looked into myself, I do not often branch out to all areas of a condition unless those areas are relevant to me, or people I know. I have been asked many time about TAK or medications and pregnancy, and I just truly do not know enough about these things and I’m not sure why you’re asking me! I don’t have any children and don’t plan on ever being pregnant. So consider what you are asking me and if it is even anything I know anything about!

If I have something to share, I will share it, whether it’s a short update or a longer one. If you are repeatedly asking me about my history, I’ve already talked about those things on my blog and on my channel, I even have a playlist. I don’t want to continually repeat what has happened to me, that’s why I made videos and blog posts, so people can go back and learn about what I have gone through THAT WAY, rather than having to remember every traumatic instance because someone asked. Again.

So to those out there who ask and ask and ask about my experience with Takayasu’s, I assume you have it too, you should understand how exhausting it is to live with. You should understand how tiring it is to continually answer people’s questions about your health.

Yes, I put this content out there. No, I don’t have to keep answering questions I have either already answered, or don’t want to answer.

Please take a second to consider this before asking another question about my health.

get familiar with my boundaries. watch my old content. leave questions I may not have answered on the relevant posts.

~ Artie

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