I’m changing how I do things for a while

Hi pals

I’ve been talking about feeling uninspired for a while and even when I have ideas for posts, I find the motivation to actually create them isn’t there. I’ve been writing more for my WIP and the inspiration and motivation to do that is slim and far between, I don’t want to be trying to force myself to write for my blog and burn out on it and sabotage the progress I’m making on my WIP. So generally the plan is every two weeks will be a post on the blog rather than weekly for a while. I may not even do that depending on how I’m feeling. But the monotonous repetitive cycle that is my existence at the moment makes it hard to write for my blog when all I want to do is complain!

I’ve also been working on other side projects which has taken up time and energy. I’ve had two self tapes/auditions for small films I wanted to try and go for as the pandemic did get in my way. I started dipping my toes in the acting world again in late 2019. If you’d like to see some videos on my experience doing self tapes and auditions as a disabled and neurodiverse person, let me know! Sub to the channel and leave a comment on this video.

I’ve also had to focus more on my health again. I was meant to taper down 1mg of steroids every month but when we tried to go from 9 to 8 first time, I became very unwell within three days and had to go back up to 9 and it took me a while to feel better again. So we changed it to every two months we would try to taper 1mg and it’s that time again. Trying to make this easier on myself, I’ve been doing 8mg one day 9mg the next and onwards to try and make the transition a bit easier and less shocking to my body. I ended up changing it to 8.5mg for a few days (I’ve had to use my pill cutter for this) and I’m doing OKAY ISH and will go down another half in a few days to test the waters. I’ve also been more relaxed on my diet/how I’m eating to make sure I am not stressing my body further with food expectations or eating less than maintenance (my nutrition coach always reminded me that being in a calorie deficit will add stress onto your body, so I’m making sure I’m not in a deficit to not add extra stress on my body whilst trying to taper as that is stressful enough trust me) so I’m just trying to enjoy food, eat more nutrient dense foods like fruit (and veg when I can, I just like fruit a lot more lol) and eating foods I enjoy. Food has always been connected to emotions for me so eating the way I like for a week or so will also help reduce emotional stress. I’m planning on doing an updated What I Eat In A Day: 1 Year Pescatarian video so leave a comment on this video if you’d like to see that and hear about how I’ve been finding the change in my lifestyle.

I’m trying to remember to take my supplements more regularly as well!! Urgh, I’m so bad at remembering to take anything after my morning meds, I’ve been forgetting my evening pills as well and taking them later. I’ve also been taking more pain reduction precautions, using certain creams that are supposed to help (like biofreeze and CBD products) and taking an extra painkiller at night. I’m trying to keep up some weighted exercise as it helps reduce pain for me as well. I did film a few clips over my weekend which I’ll upload soon that will talk about a lot of this stuff and show you what kinds of weighted arm exercises I do etc.

My sleep has been out of whack since the time change (sound silly I know but I’ve read Neurodivergent people do struggle more with this so it makes sense) plus the steroid tapering, I’m pretty tired. I struggle to get to sleep before midnight coz it would have been 11pm before the hour change. Waking up at my usual 8:30 (sometimes 7:30 coz of the hour change) but struggling to stay awake, so some days I sleep an extra hour. I’ve had a few afternoon naps this week as well which is very unlike me. But as I’ve said, I’m doing what I can to just listen to what my body needs, it needs more rest/sleep at the moment and that’s fine.

Some of my upcoming videos planned are 1 year on Adalimumab (Amgevita) injections (check out the linked video for 6 month update), Gossip Girl reading vlog part 2 (the other half of the series, check out part one here), I’m going to continue watching Dawson’s Creek and vlogging each season, I’ve heard there’s a possible reboot coming so more reason to carry on! I’m working on a Manga Reading Marathon video still, the scans that diagnosed my TAK is also one some people were interested in as I mentioned a few in my pre-diagnosis video last year and a range of scans they do use in my TAK 101 post, I also want to do some book themed videos as I’ve been reading a lot of books by Black authors I wanted to make a video to recommend them and a video about the poetry books I have read as I’ve also been reading a lot of poetry through NetGalley. Leave a comment on this post if you’d like to see me make these videos! I also have a lot of books by Asian authors I want to get to reading, I’d love to make a recommendation video on those books too.

I did get my previous benefits back recently so I have got some financial support back again (still, if you know PIP, it’s pennies) so I would really appreciate people checking out my Kofi, leave a tip or buy some of my art. I have 15 art pieces up for sale, plus a selection of handmade cards. Please check out my links throughout this post and to my social media accounts, leave some likes and share some posts, it helps a lot! I post on Twitter, Instagram, YouTube, and Facebook. I am starting to stream on Twitch again but whenever I link it here it error codes out so search artiecarden. Don’t forget to check out my affiliate link with the BookShop for any books you are interested in buying, it helps me out a lot! If there’s something you’re specifically looking for that isn’t on my lists yet, let me know in a comment what you are looking for and I’ll see if the Bookshop have it and link you.

I post pretty regularly everywhere, I just feel like I need to change how I do things for a while.

~ Artie

They/them

5 Main Tips for Being a Better Trans Ally
We Need To Talk About White Privilege
Takayasu’s Arteritis: Rare diseases Day 2021

I Haven’t Really Been Around Much

Hi pals,

My content uploads have been a bit all over the place recently and I wanted to give you an update of why that is and what has been going on. At the start of February, I had my regular income taken away from me, my benefits were stopped. This wasn’t a lot of money but it afforded me to see my chiropractor and my therapist (two very important parts of my care that cannot be provided for free on the NHS) as well as pay my phone bill and my car tax. I’ve been more active with setting up my Ko-Fi art shop and posting on there to keep people updated with what I’m doing (projects wise etc.) and I’ve set up a fundraiser as I really feel like I need to get a diagnosis/assessment for Autism and ADHD. The last year I’ve been seeing more and more traits that link to these two conditions (I talk about it a bit in my recent video where I read Act Your Age Eve Brown about two autistic people falling in love) and I have chosen to go privately. I’ve decided upon this because the assessor was recommended to me by my therapist, I trust her a lot and have spoken to her at length about my thoughts and feelings re: ADHD and Autism, plus the waitlist on the NHS is very long, and having just been through quite a triggering situation with my benefits, I am terrified to open up about my experiences and struggles again to a stranger in case I am told I am making it up or I’m not really ‘that bad’. So I would rather go to someone my therapist knows and recommends, and has experience referring previous clients to and had positive feedback from. Not that I really need to explain this to you, but I like to keep things reasonably transparent as part of my thing is showing you what it’s like to live with disabilities and chronic illnesses.

So since my benefits were stopped, I started to quite aggressively go through cupboards and such in my house, looking for things to sell on vinted, facebook marketplace, depop, twitter, wherever really. I kept a lot of this info on my ko-fi. With a mixture of really generous donations and having sold some larger scale items, I think I may have just about covered the money I had lost(for one month at least). I still have a lot of items up for sale and to sell (please check out my selling platforms, a lot of stuff is up very cheap) and even started selling my art.

A bit before all this started, I’d sold three blackout poetry pieces out of nowhere! I had them up very cheap, just curious to see if anyone would be interested, and they were up for quite a long time before someone was interested but with that one tiny success came a lot of support on twitter and I sold two more pieces that way. I started finishing and listing art on my ko-fi (once i realised you could actually use it as a store, and you get 100% of the money which no other site provides! so it means I’m able to keep my art sale costs low) I finished an old painting of a hand in like a galaxy/magic glitter style which my friend bought. I listed the remaining blackout poetry pieces, and another friend bought a piece. I then started dabbling with a new concept I’d been thinking about for a while: my great grandparents went travelling a lot in their lives and took hundreds of pictures. Last summer, my mother and I went through all these photos ad picked out the ones to keep (of them or of my mum etc.) and I kept a hold of the rest that were mainly scenery. They went to places like Switzerland, France, Italy in the 80s and 90s. The film photos have this beautiful vintage quality to them where some of them look like scenes from independent films. So I started turning them into poetry art pieces and listing them on my Ko-fi as well, another friend bought one. Part of what made me start creating art was the desperate need of finding an income. I have all these supplies at home to create art with that are taking up space and gathering dust, it felt like the right time to start using them and experimenting with what works and what people like to buy. The only cost, really, is my time and labour. I also have a lot of old pieces that are finished or just need some final touches on them. Why not try to find these a new home where they will be loved and appreciated?

Then we also had Rare Diseases day, where I wrote such an extensive essay on here that honestly barely covers the surface of what living with Takayasu’s is like. I had planned to write up a blog draft but ended up hyper-focused on it for two solid hours, wrote 3500 words and found 6 references at the time. I later went and added further website links and other useful references including youtube videos. This had so much support from the TAK community, I think it reached 500 views in a week which has never happened before and now I have a handy guide to reference in videos and blog posts and when talking to people for, not only a basic 101 of TAK, but also my personal experiences mixed in there too. This is another example of when I’ve had to open up about my pain and been ignored by professionals, so I have a long history of being gaslit by medical professionals and I’m not the only one who has been through this either.

I’m making and posting a video soon on my experiences on steroids, again as a reference for what I’ve been through but also a helpful little selection of anecdotes for people new to this medication, but I have been on then since June 2020. We have been slowly trying to taper down the dose from 15mg. I’m currently at 9mg. At the beginning of March, I dropped to 8mg. The first two nights I had mild night sweats and by the evening of day three I was experiencing such awful chest pain I was concerned I needed to go to A&E. My body was not okay, it was really not ready to drop the dose. I ended up taking a couple of 1mg steroid pills that night as my other painkillers weren’t touching the pain, and going back up to 9mg the next day. I felt better, my chest was tender but not IN PAIN like it had been the night before. I felt miles better after my Adalimumab injection on the friday, and that evening (March 5th) I also got my first COVID vaccine! I had no side effects, the injection itself was basically painless. I had a couple of energy crashed the next day but that was more down to what I was doing.

Check out this post on my opinions on taking medication.

I also had a few articles to edit, a book to read and video to make on it for a book tour, I was also working on my NetGalley reviewer rating, and feeling dysphoria, I’ve just been dealing with so much all in one moment that it has been hard to get or stay on top of everything. I mean I made a silly video Watch Dawson’s Creek With Me! because I was just so tired and burnt out I just wanted to watch a show I like and talk about it. My chronic illness related videos always do reasonably well, like this one on Hair Loss and Tips, but I was going through so much medical related trauma and triggers it just wasn’t on the cards to talk about it all. I was and still am exhausted. I couldn’t face putting on make-up for videos or photos. It helps me feel put together and ready to make something, but I couldn’t put myself into that mode. Especially when three weeks were dedicated to analysing the report on my health and writing an argument letter three pages long to convince someone that I have been wrongly judged and had a lot of assumptions made about me. All by another disabled person, which always stings more.

My only spaces of solace have been my one zoom yoga class a week (which is so severely discounted thanks to the lovely teacher I can still access it) and my zoom meetings. That includes my therapy twice a month, my weekly Sick Sad Girl meetings where a bunch of us gather on zoom to talk about a topic in relation to our lives and chronic conditions and just feel heard, zoom interviews for people’s Master’s or BA research (it’s actually very funny and validating talking to a stranger who is interested in you and your experiences of things, it’s nice to get some of these things off your chest) and occasionally facetime/zoom calls with friends or movie nights on Prime. I’ve been focusing on trying to actually connect with people in my life and face-to-face because I’ve been locked up for a year. Outside of my family I’ve only seen one friend in person (and it has always been distanced) and a couple of friends on facetime or zoom. I’ve barely left my house and even without everything I’ve been through since 2021 started, I would have found lockdown 3 really difficult anyway. I’m really lonely. It’s why I sunk into reading books and read 12 in January and 10 in February. I can’t sleep without constant noise, I can only shut my brain up by watching Among Us let’s plays because I’ll be focused on the tactics and figuring out who the imposters are, I can finally relax and fall asleep. This has been my nightly routine for months. I’ve watched all the videos from people I enjoy, multiple times, I’ve run out of videos. I specifically like Julien Solomita’s Among Us streams so I tend to just re-watch those endlessly.

A lot of my friend’s are going through it too, I won’t get into details obviously, but so many people are hurting right now. People I know, people I don’t know… it’s hard to ignore and focus on caring for myself. I take breaks when I need to. I’ve barely streamed (by barely I mean I literally haven’t once) because I’m tired and can’t do all these things I need to do whilst also trying to take care of myself. I would love to do some art streams where I sit and make art but it’s just not mentally plausible right now.

The day I wrote this up, I filmed two chronic illness related videos. I also have vlog type reading videos coming as well I just need to sit down and get to editing them. I think my post on here next week will be a collective book haul from end of December to roughly now as I’ve been picking up cheap secondhand books and new books with Christmas gift cards, and it is a simple and easy blog post to make. This is partially why I make a lot of book content, it’s easier on the emotions but also one of the only things I’ve been doing recently.

Please check out my Ko-fi and consider supporting me as I make a lot of free content for entertainment and education. Follow me on Instagram and Twitter to keep up with what I’m doing. Subscribe to my YouTube for video content. Follow my Twitch for updates on when I start streaming again. Like my Facebook page if that’s the social you use the most! Hopefully I’ll see you next week.

~ Artie

they/them

Preparing For December and Reaching my 2020 Goals

Hey pals,

I don’t have a traditional post for you this week as I’m struggling to get everything organised and fit into my schedule to be able to complete everything during the upcoming month before 2020 ends. I still have some follower count goals to meet on my Twitter, Tiktok, Instagram and Facebook and one of the ways to improve this is creating content regularly!

I’m 8 books away from my GoodReads challenge goal of 50 books, so I need to read 8 books in the next month, which I think is doable. I have a video coming out next week about this part in particular so subscribe to my channel to get an alert when it comes out. But I am organising my reading live stream schedule right now so I can let people know when they can expect to see me this next month, plus my gaming streams on Twitch I had decided I wanted to put some focus on this coming month.

Stream one of December will be my NaNoWriMo finishing up and wrap up stream on December 1st, so if you have been following along for NaNoWriMo, come join us it’ll be roughly 4pm, possibly later.

If you want to give your input on my streaming schedule I have active polls on my Twitter right now you can vote on and leave any other feedback there!

My aim is to stream on Mondays, Tuesdays, Wednesdays and Fridays a mixture of Reading Streams and Gaming streams in the evenings with possibly some extra ones on the weekends if I feel like it or want to get some extra reading done. I will stream maybe every day the week before New Year as I wont be posting any Videos or Blog posts that week. I promised myself a week off from posting edited and thought out content but think streaming could be fun to either chill out or, again, get reading done! I’m going to try and create an image on canva for my Schedule of December… but I’ve never done that before, we will see how that goes.

I’ve been putting more work into creating and posting TikToks more often, because I have seen a trend between posting regularly with gaining followers even if the videos aren’t necessarily super popular. How to go viral? No idea. I did it once early this year and had a few videos since then occasionally gain over 1k views but I couldn’t tell you why. I like to mass film a selection of TikTok videos ready to edit, title, tag and post whenever, and we are doing well so far. I’m less than 40 follows away from my 2k goal! (Find me at artiecarden)

I’m trying to write up Christmas cards to my friends to be ready for posting by end of week one December. I wanted to spread some positive energy to my friends and try to make myself feel Christmassy too. I’m not a Christmas person but this year has sucked a lot and I think this will help me feel better and my friends (because most of the people I am sending a card to, is also planning on sending one back so I get some cute cards too this year!). So, trying to fit in some card writing time and making sure I actually get to a post office in opening hours is something to think about. I also like the idea that I will be helping support my local post office with posting all these cards and present parcels!

My video this week I did the ANTI-TBR TAG so I talked about all the books I won’t read, check it out.

Instagram Is so much harder to figure out what to post, when and how. The updates keep moving things so I’m struggling to find where I’m supposed to even see when my best time and days for posting at the moment, so tend to post daily at 2pm but many of them are not permanent grid posts. I use instagram to promote my blogs and videos, but will deleted them after a week. I have been dabbling with reels, or posting my tiktoks to insta reels, not seeing a whole lot of growth or interaction really even though instagram is supposedly pushing reels the most at the moment. I have made a few reels that aren’t just tiktok re-posts and seen no difference in views, but I’ll continue as they don’t have to stay on the grid I can hide them but they are still accessible. I do plan on getting some videos off my hardrive that I used to get photos of myself, I think I can do something with them and see if that makes a difference by using the reels music options. Any tips, let me know!

Facebook is a weird one, I post almost all my work over there and anything writing related. I share my posts from there to other groups which is great for views, but all interactions are then on my personal Facebook’s post not the original from my page. It basically never leads to any new likes either, I have run out of Facebook friends to invite at this point and not everyone has see and responded to the invite. I find it weird asking my friends directly to like my page because they didn’t see the invite, I feel like page like invites are hidden away and not easily see-able when you check your app or use Facebook in a computer window so I know I will probably have to ask people directly to like the page if I want to boost the likes, but once that’s done… then what? I share the link everywhere (including here) people just don’t really use Facebook? Or, I guess my audience doesn’t… but I do see a correlation between my chronic illness posts being shared and gaining more views this route and often leads to repeat clicks further down the line from people browsing the group or having saved the Facebook post link so it’s not something I want to give up on!

On Twitter, my growth has slowed. Occasionally when a larger account RT’s me, I gain some subscribers or participating in some trending topics and hashtags but it’s been a while since that happened. When I made enemies with Sia last Friday, I did gain a decent number of new followers but a lot of them have started to trickle off, I guess they see what I post on a normal day and aren’t fans haha. I am under 100 away from my goal of 1.5k so I’m hopeful I will meet that before the end of the year.

If you didn’t know, Spotify finally updated their system to allow username editing! So it finally reads Artie on my profile and I’m slowly gathering playlists together for the shit pandemic we’ve all lived through, and my next year playlist. I have loads of playlists you can check out so worth a follow there too!

This year I did manage to boost my blog DA from 2 to 9 from some simple SEO techniques, so now I’m looking into how to take this a step further and continue to improve my blog ratings.

That’s a summary of what I’m thinking about and planning. I hope you enjoyed reading this update and me being a bit open about my thoughts and struggles with blogging and content creating. If you have any easy to understand and follow tips for all of this, leave me a comment!

~ Artie

(they/them)

Check out my Christmas Gift Guide

Read more from me

100th Post! Life in Lockdown Health and General Update

blog post header for 100th post life update a picture of me and title text

Hey pals,

This is officially my 100th post on here (though I have privated a few older posts recently, but it counts) and I don’t know what to do with it. I thought maybe a general life and health update, I haven’t done one of those in a while and things are pretty different. A lot has been happening. Lockdown has been good and bad for a number of reasons. Personally, it’s been good because I finally felt like the playing field was levelled. I was finally the productive one, people were creating more virtual content and doing auditions virtually and day courses, rather than requiring physical attendance. I’ve gotten a lot done at home and I have sold a lot of things leading to some more money, more space and much more organisation. And I’ve had the chance to care for myself and do therapy from home which got rid of the travel anxiety of going to appointments. This has all been great and helpful for me in many ways and allowed me the space to adjust to life struggles.

However, roughly since the BLM protests, everything socially has rolled downhill. JKR being a massive transphobe and being defended by hoards of people, reading Harry Potter for the first time as an adult and being deeply heartbroken by the ableism I’ve not seen anyone talk about dripping from her pages. Forced DNR’s for disabled people who end up in hospital with Covid, if you don’t sign they will grab any old doctor to sign for you. Naya Rivera’s death actually hit me quite hard after I finally watched Glee and saw the wonderful character she created and the wonderful and outspoken person she was. Conversion therapy still being legal in the UK and it not being made illegal… People not wearing masks anymore, or trying to social distance, and just going out doing whatever they want whilst the UK has the highest death/contraction rate in Europe and second in the world? And we are coming out of lockdown? Acting jobs are already requiring in person auditions instead of virtual video calls. I’ve been publicly misgendered and wrongly named a few times recently which has been hard to deal with. The fear of a third gender marker because, whilst I am proud to be nonbinary, I’m also terrified of showing my ID to someone or someone seeing my ID who turns out to be a transphobe! Police, bouncers, bartenders, any random person who might end up seeing my ID, terrify me. It’s one of the reasons I’m ‘in the closet’ in hospital with doctors because even though I like and trust my doctors, I am scared they will look at me differently if they knew. And now my mum being bullied into going back into work again even though it’s not really safe yet for us. But there you go, capitalism. So, it has been hard existing in a world that so violently hates marginalised people and blames us for everything wrong in the world, when actually it was all caused by them and the 1% they keep voting in and falling for! Large exhale. I try not to think about that too much because it is hard living in a world that just kinda mostly wants you dead. This is why we need allies to speak loudly with us and do some fighting for us, I don’t have the energy to prove my worth over and over again. I and many others shouldn’t have to prove we are worth saving, you should just care for people, yanno? Sign some petitions and email your MP’s please.

My health is the next big paragraph. I basically was diagnosed with a really rare disease that only 2.5 people per million are diagnosed with in the world. It’s a rare type of large cell vasculitis called Takayasu’s Arteritis, it affects the arteries around the heart and limbs. I have narrowing of the artery in my right arm, this has been a thing for years and what lead me to search for answers as I experience muscle fatigue from repetitive use. This is because there isn’t enough blood supplying oxygen to my muscles, it can’t get through the narrowing quickly enough, basically. Then I found out recently, I have more narrowing that showed on a recent MRA scan which means my left arm is now at risk. We bumped my dose of steroids back up a little to 15mg which is reasonably low for things like this and I’ll be having a blood test soon to see if I maybe need an even higher dose. But this scan did show my thymus gland is fine, we were concerned I might have a growth on my thymus gland (which is in your chest) which could mean cancer. So at least I don’t have cancer, right?! With all this as well I’ve been struggling with my diet and weight. I have been trying to do as much anti-inflammatory work as possible with my foods and supplements, I went from vegetarian to pescatarian for the omega 3 fats which are huge in fighting inflammation. 10 years a vegetarian and I made this big decision for myself to try and give my body the best chance. I do also take fish oil supplements and turmeric but they haven’t done a damn thing, my inflammation in my bloods is creeping up and my colon is also inflamed again, levels have tripled since January. My biologic I started at the start of lockdown has clearly not done anything? So we are looking at changing to something else but it’s mainly used for Takayasu’s not often for Crohn’s so my Rheumatologist needs to speak to a million people before we okay it and everyone is on bloody holiday so it looks like at least a month before we know. Steroids and struggling with my eating habits have slowly put on some extra pounds of weight, which is common but still hard to deal with. I am at a weight that makes me anxious and uncomfortable. I was trying to intermittent fast but I found it wasn’t working with my food needs so am just trying to eat more intuitively and listen to my body. It actually took a few days for my body’s natural hunger cues to come back coz I was just over eating from boredom so long my body wasn’t really hungry. So we are on that journey along with my exercise journey I’ve been on through lockdown where I’ve just been trying my best to move more. I started slow by using the wii fit early on, then I would be going for walks after dropping post off, and more recently I’ve been using my stationary bike (mostly because the rain was preventing me from going on walks) and also incorporating weight lifting. I’ve read weight lifting will help my veins be easier to access for blood tests and cannulas, but also helpful for my Takayasu’s as it is supposed to force more blood through my arteries and veins that maybe it’ll undo or prevent damage. We will see, but I’ve been doing well on that front and I’m really proud of myself for it as I’ve not been this consistently active since I was in college and studied performing arts and did so much physical activity and dance all week. I’m feeling fit and enjoying exercise and I think it is helping my mental health a lot too. I’m also creeping up on 2 years smoke free, I quit smoking in September of 2018 and it has been surprisingly easy to keep off them considering I smoked on and off for a decade. I still miss it sometimes when I’m out with a friend who still smokes or writing a character who smokes, it was a huge mental health crutch for me but I’m glad I quit coz it makes Crohn’s and Takayasu’s worse. I have met a really lovely lady who works with other people with chronic conditions based in Wales who has offered to give me a hand and some support with some of this CRAP! It’s funny I just stumbled upon the support group she organises that has been moved to zoom sessions since covid, otherwise it’s all based in Wales. They have accepted participants from other places around the world too during this period, clearly aware not many support groups would have done this. She has offered to chase doctors and services for me as I’m in this very annoying limbo waiting period, not very confident with ringing people, and a big part of her job is just chasing down these services that are being a bit lax with patient care. So I’m feeling a bit more relaxed and hopeful that she may help get some things moving for me, and she sounds like she knows what she is talking about and what the doctors dealing with my care should be doing. Having someone more in the know doing this is super helpful and makes me feel a bit more relaxed. Hopefully this will mean good things. I also saw today there’s an infliximab biosimilar injection possibly coming to Europe soon, which would be a fantastic option for me as my veins aren’t good enough for infusions to be done regularly along with other tests and scans I need regularly, and infliximab is often used for both Crohn’s and TAK. That helps to ease some anxieties coz even though I’m sure it won’t be available for a while, it’s something I can bring up with my doctors and see if they can find out more for me if they decide tocilizumab isn’t the way they want to go. Check out my 6 months on Adalimumab video for more details on this specific journey.

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Obviously, I’ve spent lots of time at home with my mum and my dog. It has been good for the most part, being together so much can put a strain on things. Layla, my dog, has finally learned how to play fetch! I’m so proud of her, she’s a collie mix and a rescue who has her own ideas of what she wants to do but has been picking up training over the last couple of years really well and she is so much better behaved now, still has her moments of being crazy and has no recall off lead but there has been a lot of improvement. 5 year old rescue dogs are easier to train that humans, evidently. My mum has been working from home until recently because of my health. Early lockdown she was still checking on a surgery site that was VERY slow to heal, and then starting my imraldi injections, and then going on steroids, kept me in the high risk category for a long time but I have been okay’d to relax it slightly so I can social distance more so now, so I’m hoping to see one of my friends from London soon and my local friend has popped over a few times to socially distance sit and chat in my garden, and it has really helped! My friend in Newcastle sent me a care package a while back when I was feeling really depressed and they have been putting together zine’s which has given me something to do and work towards and I’ve submitted my art to each volume. Having a reason to do some little line drawings again has also helped a lot and it has been a lot of fun. My mum and I started baking early lockdown but it made us argue so we stopped even though I masted the perfect banana bread… but we take drives to get out of the house and kept coming across little plant and food sale stalls on the roadsides and started picking up bits and pieces. We now own two tomato plants, some lettuce, leeks, and we pick up some home grown veg from these stalls which has been a nice change, there’s definitely a difference in taste.

I’ve had my productive moments and my entirely demotivated times, and that’s okay. I think overall I’ve been very productive. I’ve gotten my WIP up to 6.25k words, meaning I technically have enough words for applying for Masters, but I need a lot of editing and feedback from friends! I’ve updated a lot of my blog posts and learned a lot about SEO for my blog and youtube, which was no easy fete it’s so hard to understand! But I’ve gotten somewhere! I’ve done SO MUCH reading I quickly smashed my 12 book goal for the year and whilst writing this I’m somewhere around 35 out of 50, but if I keep going at this rate, I might have to push it again! It’s possible because I’ve been enjoying re-reading old manga and they’re so quick and easy to read I almost feel like I’m cheating. I’m trying to demolish some of my physical book TBR because a lot of these books are super old and I want to be able to unhaul any books I wasn’t that fond of and give myself some more shelf space. I have absolutely gotten rid of a lot of books several times over but looking forward to more being unhauled and finding them a new home or being donated.

I briefly dabbled in a bit of clothing upcycling or thrift flipping as a lot of people are calling it now and made a few items more useable but definitely have some half complete projects and other pieces I need to make up my mind what to do with… hmm. But I’m taking a break from that for the moment! I’ve been working on a lot of collaging in my 2020 notebook, I’ve basically filled the whole thing and got so bored at one point, I found a new notebook to start preparing for 2021 and putting some energies out into the universe that next year will be better (please, lord, whoever u are give me this solid) but I find collaging both satisfying and relaxing so it has been a helpful activity for times I am physically fidgety but mentally not really there.

I have watched everything there is to watch on Netflix it feels, this isn’t true obviously, but I hate the algorithm of Netflix and YouTube because if you go through a patch of watching one type of video, that’s all it suggests to you forever and I like to watch a variety of things and hate that it doesn’t easily show me a range of shows except what’s popular… I’m trying to update some of my LGBT+ Netflix posts but the few I still haven’t seen are just not of interest to me… or I’m not in the mood for currently so I’m a bit stuck!!! And everyone recommends the same five shows when I ask. I’ve gotten into watching a lot of true crime, mostly on youtube, but occasionally documentaries. I’m not sure why we enjoy these so much, I think it is morbid fascination.

I’m currently just exhausted of trying to do everything. I feel like I need to make some life decisions on what areas I want to focus on in my life because I do feel like sometimes I struggle doing any of it when there’s so much of it I wanna do. But I have a lot of limitations, and I may have to put a dream to one side for a while. For now, I’m just plodding along.

I hope you enjoyed reading this about me and my life. I don’t often talk about myself in this way, but I feel it’s important to share what I go through as the person behind the blog. I hope this might highlight some things for others to think about, but I also just hope it has help you get to know me a little better and that maybe you’ll follow my blog to keep up with me and what I’m doing.

~ Artie

(they/them)

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