How I’ve Been Passing My Time

Hey pals,

If you’re a regular to my social media, then you know that I am chronically ill and disabled which has lead to many, many months spent inside my own home, sometimes bedbound. I have a lot of isolation practice, except now my family are all home too to shield me, because I come under High Risk.

I can’t lie, I have moments of getting bored and I definitely miss my Costa or Starbucks iced coffees and a good take away, but generally I’m pretty used to this. Seeing all the able-bodied people struggling with spending time inside/at home kind of gave me a boost of energy and motivation because ‘haha! I am the highly functioning one now!’ and kinda just wanted to shove it in people’s faces that I’m doing stuff and filling my time! I even started exercising… daily. Who am I? At this point, I couldn’t really tell you just like I couldn’t really guess what day it is.

I have always been a bit of a loner, I enjoy my own space and I enjoy being alone. I was an only child so that probably helped. But I’ve always been a creative whether it was playing imaginary games with toys, making art, writing stories, singing My Little Mermaid songs, or watching television. I couldn’t read for a long time so I missed out on a lot of books that were turned into shows or films, and actually I’m starting to make up for that. I’ve become quite the reader over time (Yeah I should be after getting my Bachelors in Creative Writing…) and I have a large collection of physical books. One big job I did was to go through all of my read books and decide if I still wanted to keep them or not and I think I halved my collection. I still have a lot of unread books I need to at least TRY to read so that will be keeping me busy as well. I’ve recently found a love of ebooks where I find really cheap ebook versions of books I sort-of-kind-of wanted to read but not enough to splash out on a hard copy and postage. So the ebooks don’t take up physical space and they can be so much cheaper than physical copies, this benefitted me when it came to books I wasn’t sure I would care about, so I buy the ebook, give it a read, and if I really liked it I can buy myself the physical copy at a later date. Plus, it’s easier to read in bed on your phone, and it’s less work for my disabled hands to hold a phone than try to keep open a book! Some of these books are going to be great video and blog content in the future too (I Read the book and Watched the Film: Princess Diaries edition anyone?).

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We’ve had to get creative by baking. I have a really specific diet that makes it hard to shop anyway, but it’s even harder now when the shelves are empty and you’re limited to what you can buy online. So, for fun and delicious treats (for my MASSIVE sweet tooth) we have been experimenting with baking different things. We became the banana loaf cliche (but it’s so delicious… I’ve made FIVE) brownies twice but they weren’t gooey enough so we need to have another go! Crumble, and shortbread. But I’ve got a little list of things to try making for fun and see if I like them and it’s nice cooking with my mum… coz I can’t do it alone. I love being disabled, I can’t even stir the batter.

I’ve been re-organising and decluttering many areas but am far from done. I’m due a clothes re-organise coz I need to swap my winter stuff out and summer stuff in. I put my millions of hospital and doctors’ letters away in my filing box, each under different sections. Also watching DVDs I’ve not touched in a while and completing old games I’ve had for… maybe a decade so I can get rid of those too! But I’ve also been making art! Blackout poetry with some of the books I didn’t like, finishing old works and painting the backgrounds, collaging in my notebooks… I’m tired, the list probably goes on but those are the main gals.

I even figured out my streaming issues on my computer and started dabbling with the Sims 4 again, but there’s a massive bug at the moment making the game impossible to play so… it’s either decorating or not playing at all.

I’ve filmed so many book videos… I’m not a booktuber, I’m a dabbling booktuber but now… my channel is full of books! I’m reading and editing things my friend has written (for her uni course and… her hobby of just writing to maintain sane.) I’ve gone back to my BSL (British Sign Language) course and actually progressing a little… I know how to say ‘sorry, I don’t understand’ and ‘I missed that’. I think there may have been a point where I actually wrote something for my WIP… but that must have been in the early days because I can’t remember a thing. (If you want to learn something, give Skillshare a try)

IMG_7506I keep a daily diary of things I do/things I have accomplished so that I don’t lose the plot and feel like a failure and haven’t done anything. It’s for all things, big and small and some days are shorter because I decided I was going to spend time relaxing either in the sun or watching mindless television/YouTube because we still need to let ourselves rest during this time. Actually, writing this post has ticked something off a massive list of things to do I have. TICK. I’ve made a very long list of things I can/should do for the days I feel restless but can’t THINK of what to do. It’s pretty useful. I’ve been writing in my journal under the writing prompts I found. Practicing mental health care is really important during this time I’m even seeing a counsellor right now but we chat over the phone or video chat. If you need some help, I recommend reaching out and seeing if it’s possible. I’m sure lots of therapists and counsellors still need money to pay for things too.

I’ve already watched almost everything worth watching for me on Netflix but I’m sure most of you lot haven’t so just binge watch a show or film series! I have so many recommendation posts for things to watch, support me by clicking them and give yourself something to do! Want something Spooky? Give this list a try. 

If you want to see what my isolation diary actually looks like, let me know and maybe one week I’ll post some of my diary (coz as I’m writing this I’m on day 30 but this will probably not be out for at least 2 weeks…).

~ Artie

Please check out my YouTube, I’ve been working really hard on content there!

And check out two recent blog collaborations I did! Disabled Writer Tips and Being Disabled during the Pandemic.

5 thoughts on “How I’ve Been Passing My Time

  1. Thank you! I’ve tried my best and I’ve also had plenty of rest days or time during the day to rest which is important! I just wanted to share what I’ve done to try and give some ideas, coz plenty of these things are just fun and enjoyable activities:)!

  2. This is a great, informative post on having to deal with the pandemic on top of the daily challenges of living with a chronic illness. Our household is high risk too and we’re laying as low as possible until there is a vaccine or a cure. Stay safe.

  3. I wouldn’t rely on a vaccine because lots of people won’t be able to get it and lots of people will refuse so it still won’t be any safer for high risk people! Just hopeful for restrictions being enforced

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